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Living with Multiple Sclerosis - Tysabri and PML

Uploaded by: laurenvparrott
Video Description:
This is information about the 2 new cases of reported patients with PML.

Tags for this video : MS Multiple PML Sclerosis Tysabri

Find more videos in the : "People"category
See more videos uploaded by : laurenvparrott

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Hi Richard! Thank ... ( 3 months ago by laurenvparrott)

Hi Richard! Thank you for your comment! I really didn't start seeing results from Tysabri until the 3rd month, so I wouldn't worry. I'm going to bet that your mobility and balance improve by Christmas. Please keep me posted!

You are so ... ( 2 months ago by teafourtao)

You are so beautiful! You inspire me. It's 1AM, I can't sleep, having a relapse, and went to YouTube looking for some inspiration, and found your smiling eyes. Thank you Lauren!

I love watching ... ( 2 months ago by mesufferer)

I love watching your videos even though I don't have MS. Hope you're having a great day. :)

You are so sweet! ... ( 2 months ago by laurenvparrott)

You are so sweet! Thank you! I hope you are feeling well!! Keep in touch!

Aww, thank you so ... ( 2 months ago by laurenvparrott)

Aww, thank you so much!!! I hope YOU have a great day!!

really nice and ... ( 2 months ago by crillelundh)

really nice and positive videos, its good to see you and others are doing so good.
i started tysabri last week and didnt know of these 2 cases altho did hear about 1 case here in sweden also this summer.

Thank you for ... ( 2 months ago by laurenvparrott)

Thank you for writing from Sweden! That's so exciting - my brother went to KTH in Stockholm :)
I wouldn't worry about PML. Pay attention to everything and if you start noticing anything different in your body, tell your neurologist right away. The chances of getting it are so low, and it's doing wonderful things for most of the people, like me, who are on it.
Good luck with everything and stay in touch!

Hello,i will be ... ( 2 months ago by steandra)

Hello,i will be having my 8th infusion of tysabi next week and i am looking forward to it. This time last year i was hospitalised with my second relapse of ms. I spent four months in hospital having lost all my mobility and independance when eventually i was offered tysabri. A week after my first infusion i left hospital in a wheelchair and began my recovery. I went from my chair to a frame then eventually to a stick, and today i left the house without it for the first time. It's good that stuff

Thank you for your ... ( 2 months ago by steandra)

Thank you for your videos, you really help the people who are worried or unsure about tysabri. It is videos like yours that gave me hope when i needed it.
Today i feel i have got my life back, and it gets better every day.
Thank you and all the best,
Steven x

Hi there - very ... ( 2 months ago by andie221)

Hi there - very refreshing video- young msers should see this here in Australia. Lauren did it all start for you with the accident? I know for me - head injury then whammo!

Thank you so much! ... ( 1 month ago by laurenvparrott)

Thank you so much! My relapse actually started before the accident, but the accident definitely pushed it into high gear. I hope you are doing well!!

Hi Steven! Thank ... ( 1 month ago by laurenvparrott)

Hi Steven! Thank you so much for your message! I'm so glad that you're getting better every day and I wish you the very best!!

I AM SO HAPPY FOR ... ( 1 month ago by laurenvparrott)

I AM SO HAPPY FOR YOU!! I'm extremely thrilled that Tysabri is working so well for you. Good luck with your recovery and you will be in my prayers!!

I am thinking about ... ( 1 month ago by MellissainIndywithMS)

I am thinking about starting Tysabri. I have had MS for 7 years and unfortunately; I have been hospitalized 3 times in the past year and just two weeks ago, I was on iv steroids as an outpatient!!!! I spent my 40th b-day in the hospital. I was worried about starting the treatment, however; after watching your video, I have changed my mind!!! THANK YOU SOOOOO MUCH FOR SHARING

I am so glad you ... ( 1 month ago by laurenvparrott)

I am so glad you changed your mind!! Just pay close attention to your symptoms and if something changes, tell your doctor right away!! I wish you the very best!!

Thanks for your ... ( 1 month ago by tonfan)

Thanks for your video(s). My son was just diagnosed in the last year at age 15 and has been taking Rebif (which isn't really working) and now the neuro. is talking about Tysabri.The PML sounds scary,but the benefits may outweigh the risks....good luck to you..

Thank you for ... ( 1 month ago by laurenvparrott)

Thank you for writing! It's actually a blessing that your son was diagnosed at 15 versus 55. He is going to be just fine and he is fortunate that these medications are available to him. I know it is scary at such a young age (I was 18) but I'm sure he is going to be fine. Please write to me if you ever have any questions!
I wish you all the best!
Lauren :)

Tanks Lauren for ... ( 1 month ago by medad1)

Tanks Lauren for help‎
I really appreciate it‎
Regards
Mody Saudi Arabia

Thanks Lauren for ... ( 1 month ago by medad1)

Thanks Lauren for help‎
I really appreciate it‎
Regards
Mody
Saudi Arabia

Hi Mody! I'm so ... ( 1 month ago by laurenvparrott)

Hi Mody! I'm so glad I could help! I wish you the best!

Hi I hope you are ... ( 4 weeks ago by nayaz75)

Hi I hope you are doing well..
So were you saying that the people that developed PML were taking other MS drugs as well? Since the first trials of Tysabri way back I got scared of it and never looked into it any further.. I thought I would check in and see how you were doing and this is the first i have thought about it or talked about it with anyone. Thanks for giving us the info..

Hi! Yes I'm doing ... ( 3 weeks ago by laurenvparrott)

Hi! Yes I'm doing very well...thank you! No, these 2 people were not taking other MS drugs but they didn't do anything about new symptoms occuring. They were both from remote areas where the Touch program is not available. Tysabri is nothing to be afraid of. It has made ground breaking improvements for so many people!!

Your a brave women. ... ( 23 hours ago by bonnie9900)

Your a brave women. I have had MS for 18 years now. I am currently on Avonex and I have been considering switching to Tysabri the scrary PML side effect has been what is stopping me. After seeing your video and the information you shared regarding the PML I am now rethinking my choices. I am so glad you are feeling better after using the Tysabri. More prople need to hear the positive information on the success of Tysabri in MS patients. Thank you for taking the time to share your progress.

I'm 36 and on ... ( 3 hours ago by Stilleary)

I'm 36 and on tysabri for 2yrs.I was diagnosed 10 years ago but lately my body isn't doing well.Lately I've altered my diet,started working out in the hopes that it's not the MS but me not taking care of myself.I feel like I'm losing control of my body,I get depressed/angry.You seem so optimistic which is how I once felt.I'm not sure how to deal with it.I should be appreciative that I've gotten off easy so far but selfishly i'm not.Any words of advice?Besides man up and count my blessings?

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Living with Multiple Sclerosis - Tysabri and PML